I only came across the term ‘permission’ in regards of writing when being mentored by Jo Bell. Her wonderful project, 52 had given over five hundred writers the safe space to share their poetry with others in a similar position; the project had essentially given many of them permission to write. Recently I received a different type of permission when attending the Stairs and Whispers event at Ledbury Poetry Festival; the permission to accept that I have a disability.
This was the launch of the anthology of “D/deaf and Disabled Poets Write Back”, edited by Sandra Alland, Khairani Barokka and Daniel Sluman, and published by Nine Arches Press. From the perspective of someone whose hearing and sight is not particularly impaired the event was a multi-media experience of poetry films, readings, and questions, supported by sign, subtitles, and the full text of poems. The editors described themselves for those with sight impairment, and in a large hall it felt like the most intimate and captivating experience.
However, it was only afterwards, when I went away, sat in a café and took a breath that it resonated with me more personally. I have a number of autoimmune conditions; Addison’s Disease, Underactive Thyroid, secondary hypopituitarism (causing low testosterone), low Vitamin D, along with asthma, high cholesterol, chronic fatigue, periodic chronic pain, and depression. I am lucky, as I don’t have to rely on welfare, beyond NHS treatment and free prescriptions, and there are times when I am relatively healthy and able to exercise. So I have had no need to register as disabled and go through the horrendously cruel process that the austerity government has implemented in the past seven years.